Changing the lives of children affected by SPG50
To Cure Children Affected With SPG50
Ride From Toronto To Ottawa To Meet The Right Honourable Justin Trudeau & Bring Awareness To SPG50
Oct 3rd To The 7th
What Is CycleForMichael
On October 3rd Terry Pirovolakis, Michael’s
father, will set off on a solo long-distance ride
from Toronto to Ottawa.
Weighing in at 280 pounds - Terry is fairly unfit - and recognizes that completing the ride will be an excruciating up-hill-battle, but he will do anything to save his son.
He will ride for 4 days and will live-stream his journey as he completes over 110km a day.
His mission is to hopefully kick-start fundraising efforts and to plead with The Right Honourable Justin Trudeau for government support, not only for CureSPG50, but to also bring awareness to the plight of other families fighting to cure their children’s rare disease.
On April 2nd of last year Michael Pirovolakis was diagnosed with a terrible neurodegenerative disease called SPG50. This disease will take away Michaels ability to use his limbs and limit his mental capacity.
His parents decided they needed to change his future and the future of other children affected by this disease. As such they started CureSPG50 to Cure SPG50.
With your support children with SPG50 will begin receiving the life altering Gene Therapy by this time next year!
"Doing nothing is impossible!"